Resources

Medical Professional Database

Click here to download our medical professional database that includes medical professionals recommended by our group.

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Clinical Guidelines

Click here to download the Clinical practice guidelines for the care of girls and women with Turner syndrome:

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Click here to download the US Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome

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Other Useful Resources for those Affected by Turner Syndrome

http://www.turnersyndrome.org/files/resources/ts-surveillance-chart-216.pdf

  • A really excellent health check list for Turner Women.

 

http://www.tss.org.uk/docs/TSSS_Health_Checklist.pdf

  • Another great paediatric and adult health check list

 

http://www.ratemds.com/

  • This website gives the opportunity for patients to rate their doctors. It's a very helpful resource if you are moving area or are tentative about seeing a particular professional.

 

https://www.researchgate.net/publication/233885294_Turner_-_know_your_body_An_information_book_on_Turner_syndrome_Editor_Gravholt_CH_Gothenburg_pp_1-241_2009_httpnpnetpublicatorcomnetpublicationn75088268

  • A resource put together by the wonderful Claus Gravholt

 

www.ehealth.gov.au/

  • An excellent resource for keeping teack of your health.

 

http://kidshealth.org/teen/diseases_conditions/sexual_health/turner.html#

  • A really good resource for adolescent Turner Girls looking for a simple to understand basic overview of Turners.

 

www.lifeline.org.au

  • For people in need of support for personal and relationship issues.

 

www.rch.org.au/transition

  • Royal children's hospital tranisition to adult care website 

 

www.gsnv.org.au

  • Genetic support network victoria 

 

www.reachout.com 

  • Mental health website for young people including pod casts and fact sheets

 

www.ydas.org.au

  • Youth disability advocacy service for young people 12-26  with chronic illness and disability

 

http://www.gethealthynsw.com.au/

  • A helpful resource to promote general health. Free hotline 1300 806 258

 

If you are aware of any helpful resources, please e-mail lauren.gatt@mq.edu.au. Sharing resources is an important part of looking after one another and ensuring that females with Turners get a high level of care.